Well, I was going to write and update about how horrible our luck is and that Eva is just doing horrible and that this is just horrible. However, I am sitting in a family room at the hospital using a computer and there is a family in here whose baby was born in October and will not make it. Very, very, very sad. I guess this is not SO horrible comparatively.
Eva has been having a fever/rash on and of since Wed. We went to the ER Thursday morning, they thought it was just a virus. It was very up and down, one minute she'd look horrible and scary, bright red, swollen cheeks/face/ears/skin. Then, she'd look perfect with no rash and no fever and running around. This morning, it would just not switch back to the "good" side, so we were admitted. They think it is a drug reaction at this point. We are at Meritcare children's hospital this time (should've come here in the first place, but when you're flying in an ambulance, ten more minutes seems like an eternity.) They are switching her meds, hopefully going home on something LESS often. They changed her PICC dressing yesterday and a layer of skin pretty much came off with the dressing. Eva was very calm, agreeable, sweet, etc when we were at Innovis. She's no longer "buying what we're selling" and is very aggressive and argumentative with anything we are going to do. Meritcare is at least a children's hospital, so they are much better at using lidocaine for pokes and bubbles and games to help her. The pediatrician has been great and the neurosurgeon has been involved with all of this and infectious disease is involved. The nuerosurgeon is really the one who knows what she needs to be getting because he was the one that saw what this would looked like initially. THe pediatrician and myself more than anyone were ready to just quit everything and call it good. The neuro guy is very concerned, not about menigitis anymore, but about a bug that gets in there and hangs out and infects the bone of the scalp in cases like this. Infectious disease people agreed. Our friend, Jeff Braaflat, is the pharmacist getting her meds for her here at the hospital, so that makes me feel safe also.
Keep the prayers coming! Don't plan on getting any Christmas presents from me because this morning was my planned shopping day. Nope. Looks like we wil be staying until Sunday or Monday while they watch what this drug does.
Travis says "we need to go on a long vacation. One in a long car ride. I think we should go on a vacation to Chuck and Sue's" (friends who live in the cities.) I agree, but maybe drop the kids off at Chuck and Sue's and go to Mexico???? Ha!
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